ENABLE YOURSELF

I read your comment with interest.

It takes most people a very long time to get a diagnosis of MS.  It did me.  What’s interesting is this, what they call normal MRIs can, in fact, be abnormal ones.  It depends on who is reading them.

Have you told your testers that you want a copy of your MRI results sent to you?  I would also ask to receive a copy of the actual films, which you can get on CDs now.  I always get copies of everything from every doctor I go see.  This way, if you go see a Doctor, new or old, and they don’t have a copy of the film or the reports, you can bring yours and allow them to copy it.  Don’t ever just give it to them.  Make sure you get it back.

I used to compare my MRI films with those I found online.

The thing is, as we age, we all get lesions in our brains.  It’s the preponderance of lesions in certain areas of the brain, whether they enhance or not, OVER TIME, that eventually leads to a diagnosis of MS.  Or, if you have the right Doctor, it can also be given as a diagnosis when everything else has been ruled out.

Are you seeing a neurologist?  I hope so.  If you find a nice one, stick to them.  They will be your most helpful doctors.

I’m sorry for your anxiety over the lack of a diagnosis.  We all know what that is like.  Most of us had to wait a long time with the same results, the questions on friends and family faces.  They too start to question you.

As far as your friend on that trip, she probably did not realize how bad off you were until she spent a lot of time with you.  Sad to say, her reaction to you is quite typical of people.  Those people who reject you can be handled in one of two ways.  You can try to educate them or you can just push on and leave them behind.  By doing either one of these things, you have taken control of the situation instead of allowing the situation to take control of you and your feelings.  I believe in this case, I would just push on.  If she contacts you then that’s lovely.  If she doesn’t contact you, that’s okay as well.  Expect more of that and then you won’t be surprised or hurt.  It is the arming of yourself with knowing what happens that protects you from debilitating emotional wounds that people can inflict upon you.

Read MS Life in reverse.  Go to the earliest date and watch the progression.  You will learn a lot in here.  Comment and “like” along the way.  It helps the blog.  Also “Follow” the blog and you will receive your blog in your email.

We are here for each other.  There is no need to feel alone.  In the face of adversity, find people who are of “like” mind.  This way you become a part of a community.  It’s helpful.  Be careful where you hang out.  You don’t want to be in groups where the talk is mostly negative.  You want uplifting sites.  There is enough negativity going around.

Pity parties are okay but it gets lonely at a party where no one else wants to go.  Have your party and then leave.

My site’s byline is called “Enabled by Disability”.  Focus on what you can do instead of what you can’t do.  There is much to be done in your life, particularly since you are still young.  Recognize the good when it comes along, not the bad.  Learn to develop a protective shell around you.  Reach out but don’t be surprised if your hands are slapped away at times.  That’s okay if it happens.  It only means that they are not to be a part of your life.

Think of your disabilities as a rebirth.  An ability to rebuild your life using new tools.  Not many people are faced with what you are faced with but see it as an opportunity.  Wake up and take small steps in moving forward.

I always tell people, “If you know you have MS despite what the tests reveal, then you probably do, or even some other form of neurological disease that mimics MS.  Stop waiting for a diagnosis and live your live to its fullest despite having a neurological disease.”

In ending, I would like to use your comment as part of an E-Book that I am writing.  There is no compensation for it, but if you want, you will be added as a contributor to the book.  I won’t specify how you contributed so that people can’t pin that comment to you.  The other thing is that I can use your initials as the commentator without being a contributor to the book.  Either is fine.

If you would allow this, then I will have you sign a release form so that there is no legal problem in the future, not that I would expect there would be.

Thank you for your comment and I hope this helps.

Magdalena

 

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A Reminder to Self

ratty-old-booksSometimes you meet someone and for some inexplicable reason, you click with that person.  Has that ever happened to you?  It doesn’t matter whether they have Multiple Sclerosis or not.  In the world of mutual admiration, illness takes a back seat.

At the same time, sometimes you meet someone and for some reason they rub you the wrong way.  Getting to know them better, you realize that what you first felt is still how you feel weeks or months later.  Has that ever happened to you?

Then there are strangers whom you haven’t met.  You know what I mean?  For instance, people walking towards you on the sidewalk.  You smile at them and they don’t smile back?  You’ve seen them.  I’m sure you have.  Or are you the type of person that doesn’t smile at strangers?  I smile at them all the time, when I’m out that is, which isn’t very often.  These people look at you and they will react one way or another.

It is evident that something is wrong with you.  Either you are walking with a cane, leaning on someone’s arm, in a wheelchair, or walking like you’re drunk and hanging on the wall of a building.  I know you understand all these scenarios.

I smile.  It’s simply my nature to smile when I catch someone’s eyes.  That’s a weird expression, isn’t it?  (Catch someone’s eyes.)

So okay, I smile at people and some will smile back and others won’t.  Some people will even respond to your smile by uttering a greeting of one kind or another such as, “Good morning.”  Other’s make a point of trying not to look at you.  You can see them glance your way, and then they quickly avert their eyes to something else.  Still there are others who don’t look up at all.  They resolutely stare down at their feet as they walk.

Sometimes the people that you meet have a predetermined impression about you based on your outward appearance.  Aren’t we all guilty of that?  The color of your skin, how fat or skinny you are, tall or short, the way you walk and talk, their perceived intellect of you, pretty or ugly, and the list goes on.  All of these values that people judge each other are subjective, meaning that it is an individual’s perception of these values.

So what am I going on and on about?  I’m not sure!!!  Let me try and remember.  You know what this is like.  Sheesh!

Okay, I’m back.  Have to type fast before it runs away from me again to hide in the dark recesses of my mind, as though playing hide-and-seek with me.

I’m addressing how we react to people when we first see each other and the powerful impressions that are imprinted in heads.  Because of those impressions, we make a value judgement.  Right?

This is highly unlikely with people with MS (Multiple Sclerosis) since many of us are  in wheelchairs, but it’s for the others who read this blog as well.  Then again, some of us with MS also think this way.  Think about it.  We see someone in a wheelchair coming towards us.  Do we say hello or not?  What if the person in the wheelchair is hanging over the side (exaggeration here) and drooling?  Were we going to say hi but changed our minds?  Why did we change our mind? We probably made a judgement decision.  We may not be aware that we did, but we probably did.

We complain about people judging us but I bet if you analyze yourself, you too are judging others.  Practice what you preach?  Yes, I think so.  I know that I am guilty of it but if I become aware that I’m doing it, I make an immediate attitude adjustment or at least try to.

I don’t want people judging me because the symptoms of Multiple Sclerosis can be very obvious, as in my case.  What right do I have to judge others whether I’m in a wheelchair or not?

Being ill does not give us justification to throw away decent human principles.  Having Multiple Sclerosis or any other disease does not give us the right to expect more from society at large than when we ordinarily would expect to receive.  Now I’m talking respect and moral issues.  What’s that old saying by ???  I know it’s in the Bible but it’s in other places as well, even older than the Bible.

“The Golden Rule or law of reciprocity is the principle of treating others as one would wish to be treated oneself. It is a maxim of altruism seen in many human religions and human cultures.[1][2] The maxim may appear as either a positive or negative injunction governing conduct: ” (I looked this up in Wiki.)

So let’s not kid ourselves.  If you want to be treated with kindness, then be kind.  If you want that smile when you walk down the street, smile at them.  If you don’t want others to treat you with disdain, don’t do it to others.

If you expect more than what you give, it ain’t gonna happen.  I’ve found the opposite to be true.  If you give more than what you receive,  oftentimes you are met with disappointment.  That’s no reason to clump people into a Rolodex file under “people I don’t like”.

A good thing we can do for ourselves in every day living is to treat others how we would like to be treated.  It’s difficult but it’s a positive thing to do and it’s medicinal.  Don’t fill your heart with bitterness towards others who treat us unkind.  Instead treat others who are unkind as if they have a disease and they need help!  Then give them the attention that you would like to receive as an ill person.  Remember that what you give is what you’ll get, if not in this world in some other world.

MY TAKE ON THIS:
I don’t know what got into me to write the above.  I think it’s because we went out the other day and I encountered two different types of people.  One didn’t meet my eyes, another did and smiled.  There was another person, now that I think about it, who just stared down at the ground.  I felt sorry for them.
My first impulse was to feel indignant at the person who saw me but didn’t smile and the other person who saw me then glanced away.  Then I got to thinking about why I felt this way.  I suppose I’m telling you what I told myself when I hollered at myself inside my head.  I do that a lot.  Holler at me inside my head.
So take this particular blog for what it is.  A reminder to self to be nicer to people and not to expect special treatment just because I’m ill–and not to judge people by their cover because I don’t want them judging me either.