Something I haven’t talked about is what’s life like these days. I’m not talking about the medical stuff here, but life! Day-to-day life which is what the blog is all about. I’ve been so concentrated on the pain issue that I haven’t talked about anything else.
I dare anyone to blame me for this.
Here is a weird thing. I decided to buy a 2017 Fiat 500. Why? I seldom drive anywhere. I’m heavily medicated most of the time. I can’t see worth anything especially at night. I don’t have deep pockets of money to spend anywhere. You can’t haul medical equipment in the car. The trunk is too small. You can’t even haul passengers in the car unless they are munchkins with teeny tiny legs. I can’t lift my right leg to get into the car. Surprisingly, the front seat of the Fiat is higher than your average car. So what I have do is this. I found a leg raiser thing-a-ma-jig at a medical supply store. It looks like a loop on a long wired handle. You place your foot in it and pull on it with your arms. It raises your foot up, almost high enough to the level of the Fiat. It works well enough.
My life is spent running from one Doctor’s office to another. It’s the highlight of my life. I get to get dressed in something better than I normally do. I put on a wig since my hair is shot, and some makeup. I look okay for the day. Lastly, I put on my smile that everyone seems to love. As long as I’m smiling, the world thinks everything is okay with me.
I have cleaners come in every two weeks. Will hope to move them up to every week when things get better financially. I’m in the market for a new wheelchair that medicare approves of. I spend a lot of time researching this. Have you seen what’s out there? Unbelievable!!! One costs as high as $14,000. Which is, of course, the one I fell in love with. Anyone care to make a donation?
My Take On This
All is well with the world around me as long as when they see me, I am smiling. There is no such thing as showing a face of pain. If you do, they compare their pain to yours! At first, early in the disease, I tried to educate people. I no longer have the desire to do so on a daily basis. Hence, the reason for the book.
I’ve reached a point in my Multiple Sclerosis where things are sliding downwards and fast. I fought wheelchairs, but now I spend my nights prowling through websites and watching videos on all that is out there, dying to get my hands on one that works.
I watch my life changing almost daily and dramatically. There’s nothing I can do about it. There is only one thing to do.
I smile. It makes the people around me feel better and believe it or not, it eventually makes me feel better.