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It was a beneficial workout for me to go through your webpage.
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I really like the two words you used, “beneficial” and “workout”.
It really is a workout to get through all this and I’m glad you found it beneficial.
Welcome to the group and feel free to add your story.
I’M BRAND NEW AT THIS SITE- I’M A 44 YR OLD I FEEL LIKE I”M 80 YR’S OLD I HAVE HAD MS FOR 12 YEAR.I LIVE IN A ONE HORSE TOWN EOLIA MISSOUR THIS IS NOT THE PLACE 2 HAVE MS THERE’S NOWHERE TO GO 2 WORK OUT SWIM THING’S I NEED 2 DO TO KEEP ME STRONG.
After reading your comment again I felt I had been long-winded and a bit short. Long-winded and short?? LOL
I have lived in towns like you explained and my sentiments are still the same as I wrote before, however I’ve come to realize that people living in larger towns or cities can feel the same way. I know I do. Oh sure we have all the necessary equipment and venues that you don’t have but I came to the realization that this isn’t the problem, at least for me.
The problem is finding somone else on a one-to-one basis to do these things with. So even if you had all this other stuff, it would get old in a hurry and you would find yourself doing them less and less. At least I did until I met a special friend in the same position as me.
Friendship Michael, is the best medicine for me, particularly if they have the same disease. Conversation is easy, emphathy is easy, and help is readily available without even having to ask for it. This has really made a difference for me because I finally made a friend such as this. Everything is easier if you can relate to someone else without saying one word to each other and you know what Michael, she doesn’t have MS but a different disease that is just as puzzling.
I hope you find a solution to your problem. Please keep me informed. But be cautious Michael, because you want to uplife each other not drage each other down.
I am so sorry that you don’t have the essential things one needs to help oneself keep strong. Have you looked for an MS chapter in your State. I think every state has one. Perhaps they have a van that can pick you up?
One thing I’ve learned is this, if things are not available to me that I need, then I make them available to myself. In other words, there are probably others like you in your town who could use some help. I would place an ad in you paper and find them, they don’t have to have MS but an debilitating disease such as yours and meet somewhere. Between all of you, even if there is just two of you, you can dream up all sorts of things to do to keep you strong and not just of the body but your mind as well.
What you need is not a “woe is me” support group, but it sounds like you need someone to motivate you to go for walks or exercise etc….
You are young and shouldn’t feel like 80, but I’m here to tell you that YOU can be the one to do something about it. Too many of us sit around and wait for something beneficial to come along our way that we can participate in, instead of making something that others, who may want to, can participate in.
I started out with a knitting group in a brand new town when we first moved here. I didn’t know a soul. But every day I would walk a block and sit on a bench and take out my knitting and knit. Fortunately there was a bench on every bench on this street. When I was rested enough, I would walk over to the next bench and sit.
Soon I had a following of other knitters. They didn’t have MS, but they wanted to learn how to knit or crochet. My walking from bench to bench gave me the exercise I needed and then started me off with something new to do besides talking to my four walls.
Think of something you love to do anyway. Cooking? Crafts? Painting? Or maybe something you’ve always wanted to learn how to do. Put an ad in the paper saying that you’re looking for people …..blah blah blah
I’m here to tell you that just the act of getting showered and dressed to go somewhere was all the exercise I needed some days.
Don’t look for the typical, instead look for atypical. Just because you have MS doesn’t mean you need an MS center for working out or a health club. There are so many other ways you can do more for yourself.
Here is the most important thing that I have learned. NO ONE CARES LIKE YOU CARE ABOUT WHAT HAPPENS TO YOU DURING YOUR DAY-TO-DAY EXISTENCE. It’ sad but true. They love you and so on, but they have busy lives and have their own problems to contend with.
You have to be the one to make the changes you need. Remember what this log is about? It’s about ENABLING ourselves. Sure we are disabled, but we are perfectly capable of enablinb ourselves to do things just like anyone else only differently; It still gets us there.
Let me know how it goes. I would be very interested in hearing more. Oh, and one more thing. On days when you can’t……….YOU CAN’T. Give yourself a break, take the day off, cry, yell, scream, whatever……tomorrow you’ll feel much better. That too is enabling yourself. You are allowing yourself and giving yourself the right to be sad and angry and that’s all good as long as you don’t stay there too long.
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