MS Life

It’s Sunday and I’m sitting here trying not to fall asleep.  I keep nodding off at unexpected moments, the effects of so many drugs.

It’s been a difficult week due to doctors.  I am so sick of them.  I can tell you this.  It’s time for a new neurologist!  I’ve been seeing this one since 2004 and I’ve had enough of him.

At first I really liked him.  He heads the MS department at the hospital.  He also heads all the research programs on the ABC drugs for MS such as Avonex, Betaseron and Copaxone.  So he enrolled me when I first went to see him.  I saw him every four months and he would ask detailed questions as to my progress and talk to me about the drugs I was on; questions such as side effects etc.

I went through each drug over all this time and went off them because of side effects.  I am very sensitive to any type of innoculations.  As time passed and I tried each one of the therapies, I eventually made the decision that I wanted quality of life rather than feeling sick and tired with flu like symptoms duirng half of each week of my life.  I discontinued the therapies.

After this, I became someone whom he barely showed any interest in.  I would see him every 6 mos or so.  Those visits were very short and I barely had time to ask him any questions.  This started about two years ago when I stopped the therapies.

This last visit was the last straw.  He had to continually look through my file to try and figure out who I was and what I had tried or not tried as though I were someone he was meeting for the first time, but it wasn’t just this that took the cake.  I need a refill on one of my medications where the RX had run it’s course.  What I need was a new prescription (RX) with refills on it.  The pharmacy tried calling him numerous times, I called, David called and even my psychiatrist called because he wanted to discuss some of the drugs I was on with my neurologist.  He never returned any one of our calls.  Not only that, we never could get through to him.  We had to leave messages on many different voice mails. 

I made an appointment yesterday with my internist for other issues.  While visiting with him, I told him everything that had gone on with my neurologist.  My internist said that it was time for a new neurologist and referred me to one.  I will take him up on that one I can tell you, and he was kind enough to provide the prescription I needed.

That’s my big event for this week.

I hope you fared better.